~~~When a parent is given the grim news that their infant or young child has scoliosis, the initial reaction is one of disbelief and fear. If the scoliosis is of the progressive variety, a parent should know that current literature does not paint a rosy picture. The prognosis is bleak. Yet despite the relentless nature of progressive scoliosis in young children, many highly respected doctors are hesitant to cast or even brace these children for long periods of time citing risks of chest wall deformities. Yet, scoliosis by its very nature leads to chest wall deformities, cardio pulmonary problems and early death. So what gives ?
At this site parents will have access to literature which shows that the prognosis for infantile and juvenile scoliosis does NOT have to be bleak. We discuss alternative successful treatments currently being used by Katharina Schroth, Manuel Rigo, Min Mehta.
I am delighted and very proud to say that Dr. Douglas Hedden M.D. and his wonderful staff, was the very first doctor in North America to apply the method pioneered by Dr. Min Mehta. The CAST Group developed as a direct result of D's miraculous experience six months into treatment when I got in touch with the mother who subsequently formed that group. My daughter would not be where she is today without the outstanding doctors who have treated her. She is now 12.5 years and stands 5 feet 3 inches tall. When we started this scoliosis journey ten years ago, she was 19 months of age and 31 inches tall.
However, this journey has not been without its ups and downs. At the age of 8 and a half, my daughter's scoliosis was almost non-existent at 2 degrees, and we were well on our way to discarding her brace before the onset of the adolescent growth spurt. But then something very sinister came to light. There really is no other word to describe what happened; it had been going on for quite some time, and I just hadn't realized it until then. I doubt my daughter would have needed treatment with bracing for so long if the brace had had the proper-sized components or had been properly fitted from the very start! I'm certain her scoliosis could have been a thing of the past at the age of 6 or 7. The only comfort I can take from all of this is perhaps that our experience with the SpineCor brace will change the non-operative treatment of adolescent idiopathic scoliosis and it's my sincere hope that scoliosis surgery will be less prevalent in the future.
You can read my daughter's scoliosis story here